Saturday, September 24, 2011

Benjamin's Results

Hello All,
On Wednesday Benjamin had a MRI and Eco. It went pretty well. Ben had to be NPO, which means no food or drink beforehand. Which usually means a ton of crying before the procedure. But on Wednesday Ben did well until a half hour before it. After they finished and Ben woke up he cried until the sedation wore off and then he seemed to be himself. We got home at about 2:30. I do not have the results of the Eco yet. My pediatrician did call with the MRI results. The good news is that Ben has not had any strokes or tumors. The bad news is he does have a small spot on his right hemisphere that is brain damage, due to low oxygen caused from the heart defect and all he has gone through. This is what affecting the use of his left arm. He may never have good fine motor skills with it. There is a lot of unknowns at this time that only time can answer. Please keep us in your prayers.

Sunday, September 4, 2011

Benjamin Daniel

Benjamin is doing well. We are going to have a sedated Eco and possibly a MRI in October to check him over. Our physical therapist and Pediatrician are concerned with his left arm function. Also the cardiologist wants to send Ann Arbor a update on how his heart is functioning. He is a happy boy. Below is a photo of Ben and his friend Caleb. We met Caleb in Ann Arbor and his mom, Jen, and I are developing packets of information for new heart moms. This way they can have more information/support as they go through complex heart problems. Caleb has HRHS and Ben has the opposite side HLHS. Both are serious and entail three surgeries, maybe more? Keep these boys in your prayers. Have a wonderful Labor Day.