Ben had his 15 months apt today with the pedatrician. Ben continues to improve slowly. Everyone is hopeful that he will adapt to his left side trouble. Ben was not happy to have shots, but his growth is good. He is 50% for length, 25% head, 3% weight. He has always stayed consistent. He is now 20lbs 2.5oz. Very good for BEN! The daycare Ben will be going to had a little boy, Matt, for 4 years that had heart surgery and brain damage. They did not know how bad the damage was just like Ben. Matt eventually sat, walked, and talked and looked like any other boy. This gives me hope. Ben just needs time to adapt. I think that this center will be a good place for him since his main teacher was Matt's as well. We are praying that it goes well next week.
(pics still to come-sorry)
5/24/17
Tuesday, December 27, 2011
Thursday, December 22, 2011
Merry Christmas to All!
Hello,
I m sorry it has been awhile. But no news means there is nothing to report on Ben about his heart. Although he is improving on eating and crawling. He is doing therapy to work on his stiffness, which is his main obstacle. He is starting to really enjoy finger foods. The cardiologist says things are looking good. He are in a holding plan at this point. Although Ben was not happy to see the cardiologist at all. He is starting to realize more and understand what is going on. He screamed and gave him dirty looks. lol
Today Ben and Ally spend the morning at the daycare center while I observed and went over all the info about Ben. Seems like Ben like his main teacher, Ann, and I even left him with her while I spend some time in the Lamb room with Ally. I am feeling more comfortable with leaving Ben there, they are a wonderful group and have had experience very similar to Ben. Ally did not want to leave and we stayed longer to let her celebrate one of her classmate's birthday with cupcakes.
I just want to say Merry Christmas to all, because I was kinda a grinch and did not send out Christmas cards. My time is so precious at this point that I though everyone would understand and except this blog.
Enjoy it and give thanks for all of our blessings. Merry Christmas!
(Pictures to come after Christmas)
I m sorry it has been awhile. But no news means there is nothing to report on Ben about his heart. Although he is improving on eating and crawling. He is doing therapy to work on his stiffness, which is his main obstacle. He is starting to really enjoy finger foods. The cardiologist says things are looking good. He are in a holding plan at this point. Although Ben was not happy to see the cardiologist at all. He is starting to realize more and understand what is going on. He screamed and gave him dirty looks. lol
Today Ben and Ally spend the morning at the daycare center while I observed and went over all the info about Ben. Seems like Ben like his main teacher, Ann, and I even left him with her while I spend some time in the Lamb room with Ally. I am feeling more comfortable with leaving Ben there, they are a wonderful group and have had experience very similar to Ben. Ally did not want to leave and we stayed longer to let her celebrate one of her classmate's birthday with cupcakes.
I just want to say Merry Christmas to all, because I was kinda a grinch and did not send out Christmas cards. My time is so precious at this point that I though everyone would understand and except this blog.
Enjoy it and give thanks for all of our blessings. Merry Christmas!
(Pictures to come after Christmas)
Sunday, December 11, 2011
Saturday, November 5, 2011
Alligator Ben
Hello,
The McCarthy family is doing pretty good. We had a fun Halloween and are looking forward to all the holiday events to come. Benjamin is doing good. He is working hard at his therapy and seems to be improving slowly. He is crawling and pushing up on his arms. Ben is not sitting on his own yet, but we are working on it. He still is pretty much eating stage 2 baby food and drinking from a bottle. He tries to eat puffs and mum mum crackers. Today he tried to eat a fry, and he adores frozen yogurt and ice cream. Ben got approved to get another round of synagis shots this winter to help him stay healthy. The nurse is coming on Tuesday. He also is finally getting his 12 month shots and has a cardiologist apt this month. This should get him all up to date on everything. Check out the photos below.
Dan is starting a new temp job at Johnson Controlls Inc. He has a 6 month contract that may end with a job with benefits. Although he is going to be working nights and lots of hours. We will miss him. That is our update for now. Enjoy your day.
The McCarthy family is doing pretty good. We had a fun Halloween and are looking forward to all the holiday events to come. Benjamin is doing good. He is working hard at his therapy and seems to be improving slowly. He is crawling and pushing up on his arms. Ben is not sitting on his own yet, but we are working on it. He still is pretty much eating stage 2 baby food and drinking from a bottle. He tries to eat puffs and mum mum crackers. Today he tried to eat a fry, and he adores frozen yogurt and ice cream. Ben got approved to get another round of synagis shots this winter to help him stay healthy. The nurse is coming on Tuesday. He also is finally getting his 12 month shots and has a cardiologist apt this month. This should get him all up to date on everything. Check out the photos below.
Dan is starting a new temp job at Johnson Controlls Inc. He has a 6 month contract that may end with a job with benefits. Although he is going to be working nights and lots of hours. We will miss him. That is our update for now. Enjoy your day.
Thursday, October 6, 2011
Benjamin :)
Our little guy is doing well. The Eco results are good. His heart is functioning good at this time. Benjamin therapy is going good. He is improving on this left hand and we are working on sitting. Last week he was sick put seems to be getting better. We are taking the kids to a hay ride this weekend with Maria, Diana, and Tim. Should be a good time. There is also a cornfield maze for Ally to run around in and pony rides. The weather looks good and we are looking forward to it.
This winter Grandma and Grandpa McCarthy are going to AZ. So starting in January Allison and Ben are going to Walker Christian Daycare and Preschool. Preschool is built into the daycare day for Ally. They have experience with heart children and are comfortable watching Ben. So we are getting prepped for that. The McCarthy's will be back around Easter and Ally will probably just keep going to the preschool part only. That is what going on over here. Thanks for checking in.
This winter Grandma and Grandpa McCarthy are going to AZ. So starting in January Allison and Ben are going to Walker Christian Daycare and Preschool. Preschool is built into the daycare day for Ally. They have experience with heart children and are comfortable watching Ben. So we are getting prepped for that. The McCarthy's will be back around Easter and Ally will probably just keep going to the preschool part only. That is what going on over here. Thanks for checking in.
Saturday, September 24, 2011
Benjamin's Results
Hello All,
On Wednesday Benjamin had a MRI and Eco. It went pretty well. Ben had to be NPO, which means no food or drink beforehand. Which usually means a ton of crying before the procedure. But on Wednesday Ben did well until a half hour before it. After they finished and Ben woke up he cried until the sedation wore off and then he seemed to be himself. We got home at about 2:30. I do not have the results of the Eco yet. My pediatrician did call with the MRI results. The good news is that Ben has not had any strokes or tumors. The bad news is he does have a small spot on his right hemisphere that is brain damage, due to low oxygen caused from the heart defect and all he has gone through. This is what affecting the use of his left arm. He may never have good fine motor skills with it. There is a lot of unknowns at this time that only time can answer. Please keep us in your prayers.
On Wednesday Benjamin had a MRI and Eco. It went pretty well. Ben had to be NPO, which means no food or drink beforehand. Which usually means a ton of crying before the procedure. But on Wednesday Ben did well until a half hour before it. After they finished and Ben woke up he cried until the sedation wore off and then he seemed to be himself. We got home at about 2:30. I do not have the results of the Eco yet. My pediatrician did call with the MRI results. The good news is that Ben has not had any strokes or tumors. The bad news is he does have a small spot on his right hemisphere that is brain damage, due to low oxygen caused from the heart defect and all he has gone through. This is what affecting the use of his left arm. He may never have good fine motor skills with it. There is a lot of unknowns at this time that only time can answer. Please keep us in your prayers.
Sunday, September 4, 2011
Benjamin Daniel
Benjamin is doing well. We are going to have a sedated Eco and possibly a MRI in October to check him over. Our physical therapist and Pediatrician are concerned with his left arm function. Also the cardiologist wants to send Ann Arbor a update on how his heart is functioning. He is a happy boy. Below is a photo of Ben and his friend Caleb. We met Caleb in Ann Arbor and his mom, Jen, and I are developing packets of information for new heart moms. This way they can have more information/support as they go through complex heart problems. Caleb has HRHS and Ben has the opposite side HLHS. Both are serious and entail three surgeries, maybe more? Keep these boys in your prayers. Have a wonderful Labor Day.
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